Some Dreams involve parents just wanting to be by their child’s side while they access the best medical treatment available, whatever and wherever that may be.
Baby Quinn was born with severe combined immunodeficiency (SCID). Also known as “bubble baby disease,” it means Quinn has no immune system. SCID itself is rare, but Quinn has an even rarer strain of the disease.
Quinn is now 15 months old and she and her parents have lived her entire life in strict protective isolation. Earlier this year, Quinn was accepted for a curative gene therapy trial, pioneered by researchers out of the University of California, Los Angeles (UCLA).
Private air travel to Los Angeles was the safest option for Quinn because without any ability to fight infection, any illness is life threatening. Through its Quality of Life program, Help Fill A Dream has covered the expenses for three return trips to UCLA (average cost of expenses was $5,000 per trip). Local pilot, Russ Ballman, donated his time and plane to make the trips.